During the summer of 2019, I was struggling to find the medication for my sister who suffered from epilepsy. She had become resistant to some of her medications and suffered bad side effects from others. She had been given a number of different medicines and dosages by Doctors during her life.
During 2019 Cosamaide 100mg was completely out of stock in Uganda and neighboring countries like Kenya. Because I was unable to obtain them for my sister, she became very weak.
She never recovered even when Cosamaide became available again. My sister later passed on in October 2019 which was very sad and devastating for me, my parents and for all of the family.
It was from this experience that I decided I wanted to help and support people with epilepsy, especially those who have no medicine and are discriminated against in their communities.
IT WAS FROM THIS EXPERIENCE
THAT I DECIDED I WANTED TO
HELP AND SUPPORT PEOPLE
Epilepsy Awareness Uganda is an NGO that works to bring together all people aﬀected by epilepsy in Uganda.
We are working with other volunteer team members, in Uganda and overseas, to help bring medication and other assistance to those with epilepsy, and to raise awareness of epilepsy among the people of Uganda.
We have partnered with Epilepsy Connections Australia, an organisation that has a heart for helping the vulnerable and disadvantaged people around the globe who have been discriminated against due to their disability.
Gideon Ronald Akanyijuka BSc (Hons)
CEO | Founder
Epilepsy Awareness Uganda (EAU)